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Pulmonary fibrosis (PF) is an uncommon and frequently fatal lung disease. Early and accurate diagnosis followed by prompt treatment is crucial to preserve lung function and reduce the risk of a drastic worsening of the condition.
This MYPF website is developed to support individuals with PF and those caring for them, including healthcare providers. It offers a wide range of resources, including disease education, information about access to treatment and support, as well as practical advice to help patients and caregivers meet their health-related needs and cope with their challenges in daily life.
To create MYPF, Rainbow Across Borders has partnered with Action for Pulmonary Fibrosis (APF) and the European Idiopathic Pulmonary Fibrosis Related Disorders Federation (EU-IPFF), both of which already provide valuable services to PF patients, caregivers and healthcare providers in the United Kingdom and Europe respectively. Much of the information in MYPF is adapted from their websites with their kind permission.
Please remember that the information in MYPF is for educational purposes only. It is not intended to be a substitute for professional medical advice. Always consult your doctor regarding your specific medical condition.
Supported by
…twin characters created for MYPF to guide you in your journey with PF – whether you’ve just been diagnosed, living with PF or caring for someone with PF.
Although they are fictitious, their thoughts and advice are based on true life experiences and accounts from PF patients and caregivers.